Empowering Voices in Core Outcome Set Development in Rheumatology
Webinars
General introduction about objectives and methodology of OMERACT
General introduction about objectives and methodology of OMERACT
General introduction about objectives and methodology of OMERACT
a) Understand how patient research partners can contribute to the development of a core outcome set.
b) Understand the three key components of the original OMERACT filter: truth, discrimination and feasibility.
c) Recognize the different forms of validity that are important from the perspective of patients: truth and feasibility.
d) Contr
a) Understand how patient research partners can contribute to the development of a core outcome set.
b) Understand the three key components of the original OMERACT filter: truth, discrimination and feasibility.
c) Recognize the different forms of validity that are important from the perspective of patients: truth and feasibility.
d) Contribute actively to the critical appraisal of measurement instruments.
Communication and collaboration in OMERACT working groups
General introduction about objectives and methodology of OMERACT
General introduction about objectives and methodology of OMERACT
a) Integration into Working Groups
b) The OMERACT recommendations for involvement of PRPs in working groups.
c) Do’s and don’ts for communication between researchers and PRPs
Introduction to an OMERACT Conference
General introduction about objectives and methodology of OMERACT
Introduction to an OMERACT Conference
a) The OMERACT consensus process
b) The workshops and sigs;
c) Meeting structure and program
d) Voting
e) General Questions & Discussion
Place of Patients in the Regulatory Process
An Introduction to OMERACT and Core Outcome Set Development in Rheumatology
OMERACT and Patient involvement in core domain set development
a) OMERACT and the regulatory process
b) Why is PRP involvement in the regulatory process important?
c) The FDA strategy for patient involvement
d) The EMA strategy for patient involvement
e) What is the difference between a patient research partner (PRP) and a patient advocate?
OMERACT and Patient involvement in core domain set development
An Introduction to OMERACT and Core Outcome Set Development in Rheumatology
OMERACT and Patient involvement in core domain set development
a) Povide a general introduction inthe OMERACT way of developing a Core Domain Set.
b) Introduce the importance of patientinvolvement in Core Domain Set development.
c) Explain the role and experiences ofpatient research partners in the OMERACT working group for Myositis.
An Introduction to OMERACT and Core Outcome Set Development in Rheumatology
An Introduction to OMERACT and Core Outcome Set Development in Rheumatology
An Introduction to OMERACT and Core Outcome Set Development in Rheumatology
a) Provide a general introduction in the Delphi Method
b) Understand the placeand purpose of the Delphi Method in the context of Core Domain Set development
c) Learn how you as a patient research partner (PRP) can contribute to the design and conduct of a Delphi study.