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a) Understand how patient research partners can contribute to the development of a core outcome set.
b) Understand the three key components of the original OMERACT filter: truth, discrimination and feasibility.
c) Recognize the different forms of validity that are important from the perspective of patients: truth and feasibility.
d) Contr
a) Understand how patient research partners can contribute to the development of a core outcome set.
b) Understand the three key components of the original OMERACT filter: truth, discrimination and feasibility.
c) Recognize the different forms of validity that are important from the perspective of patients: truth and feasibility.
d) Contribute actively to the critical appraisal of measurement instruments.
a) Integration into Working Groups
b) The OMERACT recommendations for involvement of PRPs in working groups.
c) Do’s and don’ts for communication between researchers and PRPs
a) The OMERACT consensus process
b) The workshops and sigs;
c) Meeting structure and program
d) Voting
e) General Questions & Discussion
a) OMERACT and the regulatory process
b) Why is PRP involvement in the regulatory process important?
c) The FDA strategy for patient involvement
d) The EMA strategy for patient involvement
e) What is the difference between a patient research partner (PRP) and a patient advocate?
a) Povide a general introduction inthe OMERACT way of developing a Core Domain Set.
b) Introduce the importance of patientinvolvement in Core Domain Set development.
c) Explain the role and experiences ofpatient research partners in the OMERACT working group for Myositis.
a) Provide a general introduction in the Delphi Method
b) Understand the placeand purpose of the Delphi Method in the context of Core Domain Set development
c) Learn how you as a patient research partner (PRP) can contribute to the design and conduct of a Delphi study.
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