Welcome to OMERACT Patient Research Partner Network

Ensuring patients' voices in core outcome set development

Welcome to OMERACT Patient Research Partner Network

Ensuring patients' voices in core outcome set development

Welcome

Welcome to the OMERACT Patient Research Partner (PRP) home page! We are a virtual home for information, resources, education, networking, and new and tested ideas and concepts utilized by patients and researchers interested in patient-centred international rheumatology outcome measurement research.

For updates and recent information please go to the What’s New Section

Your PRP Leaders,

Tom Buttel, AUS, George Casey USA, Mary Cowern UK, Ingrid de Groot NL, Catherine Hofstetter CAN

Find out more

Mission & Objectives

Mission

Objectives

OMERACT Patient Research Partners (PRP) support researchers by sharing their lived experience with a rheumatic condition. The PRP network facilitates the effective participation of all PRP's engaged in the OMERACT process.

Objectives

To maintain the leading role of OMERACT in patient-engaged outcomes research.
To support sustainable partnerships between researchers and PRP’s by promoting full involvement of PRP’s in OMERACT working groups.
To strengthen PRP roles and skills by providing support and education to PRP’s.
To create a literate and motivated resource for OMERACT research and knowledge transfer activities.

Patients Add Power to Research Initiatives

Nobody knows how arthritis and other rheumatic conditions change your life better than the people who have the condition. Recognising this, OMERACT has Patient Research Partners fully integrated into each stage of the OMERACT process from helping to create a research idea to crafting the research implementation plan to identifying and r

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Patient Research Partners Definition

Patients Add Power to Research Initiatives

OMERACT defines a Patient Research Partner (PRP) as a person with a rheumatic disease who participates or has participated as an active research team member on an equal basis with professional researchers, thus adding the value of experiential knowledge to a research project. PRPs are not just a focus group or research subjects, but full members of the research team. Working groups are encouraged to reach out and create equal opportunities for PRPs to participate to their interest level or capacity in research activities throughout the year. PRPs who attend the biennial OMERACT meetings have full voting rights equal to the research professionals present.

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