OMERACT Patient Research Partner TOOLKIT

On behalf of the OMERACT initiative, we would like to welcome you as a new Patient Research Partner (PRP) and member of the OMERACT community. We are excited to have you join us in our mission to improve the measurement of health outcomes in rheumatology and related fields through patient-centered research.

As a new PRP, we understand that you may be unfamiliar with the OMERACT initiative and the role of Patient Research Partners in this work. To help you get started, we have developed an OMERACT PRP Toolkit that includes a range of resources and tools to support your participation. These resources have been designed to provide you with an introduction to patient-centered research and the OMERACT initiative, as well as practical guidance on how to contribute to this work as a PRP.

The OMERACT PRP Toolkit includes a range of resources, such as PRP Roles & Responsibilities, the OMERACT Primer, which provides an overview of OMERACT and its goals, online learning modules focused on Core Domain Set Development and Instrument Selection, an OMERACT Glossary and articles of interest.

We hope that you find the OMERACT PRP Toolkit to be a valuable resource as you begin your work as a PRP within the OMERACT community. We look forward to working with you and learning from your unique experiential knowledge and insights as a patient with a rheumatic disease.

The toolkit includes:

1. GUIDING PRINCIPLES OF OMERACT PATIENT RESEARCH PARTNERS
2. OMERACT PATIENT RESEARCH PARTNER ROLES & RESPONSIBILITIES
3. OMERACT ELEARNING MODULES
4. OMERACT GLOSSARY
5. OMERACT PRP NETWORK WEBSITE
6. OMERACT WEBSITE
7. KEY PUBLICATIONS
8. UNDERSTANDING AUTHORSHIP AS A PATIENT RESEARCH PARTNER