Empowering Voices in Core Outcome Set Development in Rheumatology
Welcome
Welcome to the OMERACT Patient Research Partner Network! We are a dynamic virtual platform dedicated to offering information, resources, education, and networking opportunities, as well as fostering innovative and proven ideas for patients and researchers passionate about patient-centered international rheumatology outcome measurement research.
Mission & Objectives
Mission
Objectives
Objectives
OMERACT Patient Research Partners (PRP) support researchers by sharing their lived experience with a rheumatic condition. The PRP network facilitates the effective participation of all PRP's engaged in the OMERACT process.
Objectives
Objectives
Objectives
- To maintain the leading role of OMERACT in patient-engaged outcomes research.
- To support sustainable partnerships between researchers and PRP’s by promoting full involvement of PRP’s in OMERACT working groups.
- To strengthen PRP roles and skills by providing support and education to PRP’s.
- To create a literate and motivated resource for OMERACT research and knowledge transfer activities.
I know that’s important to researchers from the medical side, but from the patient’s side this is what’s really important to me, so how do we meet in the middle ? (Patient, Canada)
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