The Patient Research Partner (PRP) Support Team is a volunteer led committee comprised of PRP’s from 3 different continents. The PRP Support Team represents all PRP’s engaged in OMERACT’s work in disease groups, instrumentation groups, methodology groups, imaging and bio-marker groups, on the Technical Advisory Group (TAG), the Scientific Advisory Committee, on the Executive Committee and any ad hoc task force groups.
The PRP Support Team aims to regularly communicate in an open and transparent manner, through various methods including social media and the PRP Network portal on the OMERACT website (omeractprpnetwork.org) the activities within OMERACT including networking, education, participation opportunities and resource links. At bi-annual OMERACT meetings the PRP Support Team develops the PRP agenda including social activities, works with the travel co-ordinator to assure registration is completed and optimal travel and accommodation arrangements are secured and works with the OMERACT administrative staff to address any questions or issues regarding the conference sessions including assigning PRP newcomers with an experienced OMERACT “Buddy”.
Membership is currently comprised of PRP’s from 3 different continents; Europe, North America, and Australasia, but does not preclude the inclusion of a PRP from another continent.
Optimum membership is 7 PRP’s including a minimum of one PRP Support Team member who sits on the OMERACT executive committee and a minimum of one member who sits on the Technical Advisory Committee (TAG).
Members will be chosen with consideration to type of rheumatic disorder, OMERACT group participation, skillsets and ability to contribute. All members of the PRP Support Team must be able to understand, speak, read and write English.
All PRP Support Team members must have attended at least one OMERACT conference.
PRP Support Team members are identified and nominated by the team, and recruited by the chair.
The committee is led by a chair, who is a PRP Support Team member on the OMERACT executive committee. The chair represents all PRP’s engaged in OMERACT and reports on the work of the PRP Support Team to the executive on behalf of the team.
The PRP Support Team receives administrative support from the OMERACT administrative staff, including organizing meeting dates, sending out meeting notices, preparation and distribution of minutes from meetings, editing memos, letters, announcements and other communications, and technical support as needed.
The members on the PRP Support Team serve on the team for a maximum of 6 years (3 OMERACT bi-annual conferences). The members shall rotate off the team after 6 years, the rotation shall be established in 2021 by consensus of the team. Team members from each of the 3 continents will be encouraged to nominate their geographic replacement.
Duties and Responsibilities
All PRP Support Team members shall participate in all support team activities fully and to the best of their ability. This shall include, but is not limited to, responding to emails requiring input or decision making, attending 10 monthly PRP Support Team teleconferences, face to face meetings at OMERACT bi-annual conferences and /or virtual conference activities such as SIG’s and workshops. At face-to-face OMERACT bi-annual conferences members shall participate in the development of the PRP agenda, education sessions and social activities.
Should a personal or health matter prevent a PRP Support Team member from participating fully in the team’s work, that member will communicate to the Chair in a timely manner, their request for a period of time away from their responsibilities.
On an annual basis, the PRP Support Team will call a meeting to review the activities of the previous year and develop a plan for activities for the coming year. Regular monthly teleconferences will be employed to inform, discuss and act on developments and issues requiring the input of the PRP Support Team memb